Resources
“Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD).”
Spina bifida can happen anywhere along the spine if the neural tube does not close all the way. When the neural tube doesn’t close all the way, the backbone that protects the spinal cord doesn’t form and close as it should. This often results in damage to the spinal cord and nerves.
Spina bifida might cause physical and intellectual disabilities that range from mild to severe. The severity depends on:
The size and location of the opening in the spine.
Whether part of the spinal cord and nerves are affected.
Visit What is Spina Bifida? | CDC for further information.
– Centers for Disease Control and Prevention
Indiana Spina Bifida Clinics
*RILEY HOSPITAL FOR CHILDREN AT INDIANA UNIVERSITY HEALTH
705 Riley Hospital Drive
Indianapolis, IN 46202
Ages served: 0-18
RILEY HOSPITAL ADULT SPINA BIFIDA CLINIC
705 Riley Hospital Drive
Indianapolis, IN 46202
Ages served: Adults
Center for Youth and Adults with Conditions of Childhood
CENTER FOR YOUTH AND ADULTS WITH CONDITIONS OF CHILDHOOD
Resource Websites
The following sites provide general resources for families with medical needs and comprehensive information about Spina Bifida.
The mission of Indiana Family to Family is through the power of lived and shared experience, they support families raising children or youth who require additional health or educational assistance by providing answers, resources, practical training, and vital community connections and by advising the professionals who serve them. support families who have children and youth with health care needs and/or disabilities through education, outreach and community partnerships.
The mission of SBA is to build a better and brighter future for all those impacted by Spina Bifida.
The Arc of Indiana is committed to all people with intellectual and developmental disabilities realizing their goals of living, learning, working and fully participating in the community.
About Special Kids (ASK) is Indiana’s Parent to Parent organization that works throughout the state to give support, answer questions and provide information and resources to families of children with special needs. ASK staff are extensively and continually trained as well as parents of children with special needs; therefore, we can help other families and professionals understand the various systems that families encounter related to special needs.
Disclaimer: The information and links on this page are being provided for informational purposes only; they do not constitute an endorsement or an approval by SBIND of any of the products, services or opinions of the institutions, companies or organizations listed. SBIND bears no responsibility for the accuracy or content of the external site or for that of subsequent links. Consult a healthcare professional before using a new medical supply or program.)
Supporting, Empowering, and Connecting
We’re here to serve those impacted by Spina Bifida in Indiana. Please feel free to contact us with any questions or comments.